• slide1
  • slide2
  • slide3
  • slide4
  • slide5
  • slide6

Calling all alternative cancer treatments experiences...

I'm 29, diagnosed with Stage 2 Triple Negative Breast Cancer, tumor size 1.3mm X 1.9mm. Lymph nodes probably not infected but will know for sure after my lumpectomy 8/6/14. I have changed my diet and lifestyle since the morning of the Dx. I used to eat everything in sight, though tho I'm naturally skinny so never thought anything of it. I've been completely vegan since that morning and have been adhering to a strict alkaline diet and exercising everyday and feeling great! However, I just want to be fully prepared for the possibility that I may need chemo if indeed it has spread. My research has been so mixed, deciding between chemo or alternative treatments involving B17, eating only fruits/veg... vs. chemo.  Does anyone have any personal experience with either success or failure after refusing chemo? I have heard many success stories myself, either friends' moms or aunts but I haven't heard any failures (except Steve Jobs but even his wasn't so much a failure as pancreatic cancer is very deadly and he survived another 8 years post his initial Dx when only 4% survives past 5 years)...

Hair Loss using Letrozole

Hello, I've been using Letrozole for a year and a half. Aside from muscle and joint pain, it's been going okay. Some fatique as well. However, lately my hair has really thinned out - to the point that I can't put it in a ponytail anymore. My scalp isn't showing....yet but I'm afraid I'm headed there. How's anyone else been having this problem? Any suggestions? I'm taking Biotin (even doubled the dose). I also (out of desperation) started using an off brand of romaine for women. Would love to hear if anyone has ideas.

Side Effects of Arimidex After Almost 2 Years

I'm new to this site but maybe this will be of interest to someone. I have been on Arimidex for almost 2 years now, having had a mastectomy in November 2003. Firstly I had hardly any side effects and slowly but surely they seem to be building up, some days far worse than the next. I have never had nausea though, thank goodness. The main side effects which I am experiencing now are aching bones and joints, mainly while trying to sleep at night. Also tiredness and seem to want to just go to bed to rest from as early as 8 in the evening - this is sad as I always went to bed late before my breast cancer. I also contemplated coming off the drug but decided that as the cancer hasn't come back at all in almost 2 years then perhaps I am doing the right thing in taking it every day.

Proton Therapy for Breast Cancer

If you’ve been diagnosed with breast cancer and are looking for treatment options, join the Maryland Proton Treatment Center’s webinar on April 25 to learn about proton therapy for women’s cancers. Proton therapy is a highly precise form of radiation treatment that enables physicians to deliver a targeted dose of radiation to your tumor, while limiting radiation to the surrounding, healthy tissue in the heart and lungs. Sign up for the webinar now at https://register.gotowebinar.com/register/814211378336735129

Liver damage after having radiation for breast cancer

I had breast cancer six years ago, and I had radiation.  I was burned so bad .   Now I have severe scarring on my liver.  The doctors will not admit that it was caused from the radiation, but my cancer was in the right breast and that your liver is located right behind the right breast.   I cannot believe that as bad as I was burned, that it did not also scar my liver.   I was told several years ago that my lungs were scarred from the radiation, so why couldn't my liver of been scarred too.  I have never drank, but trying to convince a doctor that my liver damage is not from drinking is impossible.  I am scheduled for liver biopsies in two weeks.   Has anyone else ever had this happen after having radiation as a followup for breast cancer?

Dr. Lorraine Day

Think this doctor has an interesting story on treating her breast cancer. https://www.youtube.com/watch?v=IAF23j8OU3M

side effects of tamoxifen and arimidex

I am a five time cancer survivor.  I am 55 years old and all of my cancers happened between 50 and 55 years of age.  I am cancer free at this moment.  One of my cancers was breast cancer.  They put me on tamoxifen, which I was on for two years.  The side effects were horrible.  Memory loss, forgetfulness, extreme hot flashes and extreme anxiety to name a few.  I got my doctor to change me to arimidex which I was on for 16 months.  My side effects were extreme bone pain, tiredness, more memory loss, inability to put words together and extreme hot flashes.  I took myself off of it because this wasn't living.   I have been off the two drugs now for just over a year.  I still have bone aches and burning in my hips.  My shoulders are painful to the point that wearing a bra is very uncomfortable.  My ability to put words together is a constant battle.  My memory loss is frustrating.  My teeth are cracking and coming apart. The only thing that calmed down were my hot flashes.  All the aches and pains and even the teeth are doable.  What I am really scared about is that I have aquired dementia due to these pills.   I would love for someone to tell me their story and/or give me hope that I will live with this but it won't get worse.  I can do that.  Please share your story with me as right now it is not just me that notices these signs.  It is my husband, my friends and my employees.

Shrinking the tumor; stopping the spread

Can anyone tell me if these are one in the same? Dr. talks about shrinking the tumor then doing "chemo."  All the drugs my daughter is taking are labeled "chemo drugs."  What's the difference in chemo in pill form and chemo intravenously?

looking for Intravenous Vit C provider in Northern CA

Hello - I am looking for a Intravenous Vit C provider in Northern CA near Sacramento.  Can someone here give me a recommendation?

Mammogram question

Hello. I am 42 and just had my third screening mammogram and I am terrified. Never had anything show up before, but I got a call that I need a diagnostic mammogram and ultrasound now. The findings were: No microcalcifications, no asymmetrical distortion or thickening of skin. Focal density in right breast seen on cc view only, may be artifactual. Further evaluation is advised I am scared. I have very large, dense breasts. I don't feel anything abnormal in there. I read that dense things are like 85% likely to be cancer.  Any thoughts or advice is welcome

stage 4 breast cancer

hello everyone my wife has been diagnosed with stage 4 breast cancer she refuses to ask or has told doctors what the outcome will be i am scared to death of losing her can yo beat this type of cancer i am 38 and we have a 7 year old daughter cant imagine life without my wife

dexamethasone and treatment

My dads girlfriend was recently diagnosed with stage 3 breast cancer. She had a lumpectomy and no lymphnodes are involved. She is due to start treatment next week.There is one thing I am confused about and was looking for a little insight on it. They have her taking 16mg/day for 2 days of dexamethasone to help with nausea?!?!?! Combined with some other things. They have written her a script for kytril (sp?) to be used as necessary if experiencing nausea as well. I don't understand why dexamethasone is being used for nausea. My dad is fighting brain cancer right now as well and he uses dexamethasone but to reduce brain swelling and with a stage 4 GBM has never been on 16 mg per day. I know how ugly this drug can be and I don't understand why they are using it in treatment of breast cancer. I also don't understand how they can flood her body with such a high dose and then just stop it after 2 days. I thought it needed to be tapered down (I guess she isn't on it long enough for tapering?!?!?) Any information on this would be greatly appreciated from anyone who has experience with decadron (dexamethasone) Struggling

Newly diagnosed

Have been diagnosed with a 2.5cm tumor  idc with the additional biopsy of the one.suspic ious lymph node that was positive.  Now I am totally freaked out.  I cannot stop feeling like my whole body is full of cancer and every ache and pain means it has spread. I haven't stopped crying since Friday and cannot even believe I will be.alive in 6 months.  Wish I could turn my brain off.  Don't see the surgeon until the 28th.  Gonna loss my mind with worry.   Is this nornal?

Fat Necrosis

Has anyone had experience with fat necrosis? I had a lumpectomy over a year ago, and completed radiation treatments a year ago. I have had several lumps appear In close proximity to the incision. My breast surgeon said they are fat necrosis. In one case, she ultrasounds the area. With a new lump, she told me she is "positive" it is fat necrosis, but didn't do any ultrasound or biopsy. I am going for a second opinion next week.

Metaplastic Carcinoima Triple Negative

I've yet to come across patients surviving with this subtype of breast cancer.  I would love to connect with others who have been diagnosed with this!

Miracle cures

I've  noticed Fred Eichhorn mentioned in different threads on this site. Putting aside themail fact that his ideas have been around for over a hundred years (and have been proven, time and time again, to be false), I have personal experience with his "treatment". A close friend had breast cancer. It was incurable, prognosis 2 to 5 years. Late in her journey, Eichhorn contacted her. Traveling to LILLIAN, I  listened to his theories for 3 hours. My friend chose to use his extremely expensive "therapy", a mineral and shark collagen drink. Surprise! She died. The supplement had no noticeable effect; when she talked to him, he mentioned tests that her oncologist  had never heard of. My friend made it to 5 years before deciding She died. The money she wasted on his treatment would have been better spent enjoying life.

Rib pain months after radiation stops

Hi, I had a lumpectomy last Jan followed by 6.5 weeks of radiation.  I am now taking Femara with the usually side effects but about 8 weeks ago I started experiencing pain under my left breast in the rib area (same side as the bc).  As a precaution my doctor sent me for a bone scan which is negative but still no diag for this pain.  Anyone out there with a similar situation?  Thanks

Salvestrols and Salicinium

I should be grateful if anyone can tell me whether Salvestrols prevents Salicinium from working.

Breast cyst after menopause?

Just had a callback for a repeat mammogram after my usual annual check.  Had further views and ultrasound.  Radiologist told me it was just cyst, no need for further tests or to have it aspirated.  I've been menopausal for 3-4 years and never taken HRT.  I've since read that cysts are almost unheard of in postmenopausal women and should be treated with suspicion.  Family history of breast cancer (sister, premenopausal breast cancer) but no cancer myself.  Any menopausal sisters out there with cysts?  Thanks!

Post-mastectomy pain syndrome

Hello - I'm wondering if anyone else has had experience with intense, unrelenting burning pain after a mastectomy, in the armpit and on the incision. It's been about a month since my mastectomy and I haven't been rid of this pain one minute; it's only relieved to a certain degree by narcotics. My surgeon knows nothing about the syndrome, apparently. I've read a little online and plan to set up an appointment with some pain specialists, but I'm astounded that there's so little information about this. Nothing on Susan Love's site either. Thanks. Linda D.

Stage IV breast cancer spread to liver and bones

Would like to know the life expectancy on the above type of cancer.Also, if anyone has had treatments at Oasis of Hope in Mexico and how effective the treatment has been. Many thanks

Breast calcifications

Hi  So I had my first mammogram in November 2016 which they said they would want me to come in from additional screening and mammograms. I went in Jan 2017 and had a diagnositic mammogram plus an ultra sound. They said I have calcifications that are grouped together and they need additional screening or testing. They said it was a 15% chance it was something. BUT that leaves a 85% its nothing. I am NOT saying early testing or detection isn't important. I have also had Cervical Cancer -9 years ago, I understand cancer. I also had 2 years of false positives and crazy treatment options offered that I did not go with. My second opnion docs treatment was the least invasive and I am 9 years cancer. I never had raditation or chemo. I guess I am looking for others who's calcifations have lead to more. When I search online I only see other treatment if it comes back positive. Has anyone on here had calcifactions that lead or then lead to breast cancer?  

Going Crazy

I am 58 and had a mammogram on Monday, which was followed by additional views and then an ultrasound.  They found a 1.3 x 1 cmm mass with some calcification.  It was classified as a bi rad 4 and I have a biopsy tomorrow.  I am scared to death.  The radiologist gave me no information and the concerned look on the doctors face have me totally freaked out.    I have no idea what any of this means.  Maybe someone can help me.

Cancerous tumor in right axillary

This tumor has been growing very slowly for about 3 years. I already had a bi-lateral mastectomy. The tumor was removed 4 times already, keeps coming back. I have been on a very strict diet, tried everything on this earth. I am very discouraged. I am thinking of trying MMS with DMSO topically, a little afraid to take internally. Does any one know a reliable source that can give me guidence. My funds are very low! I will forever thankful. God Bless, Marie

Arimidex side effects

I been taking Arimidex for 2 yrs and 1/2 months I was done with radiation on Jan. 2014 then after 3 wks I started Arimidex and then I started with nausea and minor side effects. On Good Friday I got up I could not walk and I went like this for year in half. I kept asking my doctor to please change my Arimidex to another estrogen blocker until last month. On Feb. 13 she change me to Tamoxifen. I suffer severe leg pain and lately my hands and wrist were starting to hurt before they change Arimidex. Has anybody suffere severly from pain I have 2 yrs. and half to go with this Tamoxifen now. Can anybody please share some of your experience with me.


Puberty's Onset May Depend on DNA

British researchers zero in on genetic links between early puberty and increased cancer risk

Could Breast Milk Tests Replace Mammograms?

Scientists hope to improve breast cancer screening of younger women

More Asian-American Women Getting Breast Cancer

Out of 7 nationality groups studied, only Japanese women didn't have an overall increase in the disease

Misunderstood Gene Tests May Lead to Unnecessary Mastectomies

Half of breast cancer patients who had both breasts removed unsure of genetic risk of more cancers: study

Mammogram Guidelines Have Changed, But Are Doctors Listening?

Study finds that most still recommend the breast cancer screen for women in their early 40s

Can Smog Raise Breast Cancer Risk?

Exposure to fine-particle air pollution linked to dense breast tissue, a risk factor for tumors, study finds

Can Daily Low-Dose Aspirin Lower Cancer Death Risk?

Large U.S. study points to the drug's potential tumor-fighting abilities

Gene Changes May Put Childhood Cancer Survivors at Risk

1 in 4 kids who lived through cancer developed another cancer by age 45, study finds

Breast Cancer 'Immunotherapy' Helps Some With Tough-to-Treat Disease

A minority of women with 'triple-negative' tumors responded to Tecentriq, but they responded well

Survival Continues to Improve for Most Cancers

Still, more progress is needed and racial disparities remain, U.S. report finds

Many Women Who Get Breast Cancer Gene Test Don't Need It

6 out of 10 screened weren't at high risk for the disease, researchers say

Is Radiation Therapy Overused in Breast Cancer Care?

Shorter course less expensive, equally effective in certain patients, researchers say

Hodgkin Lymphoma Survivors Face Risk of Second Cancer: Study

Those diagnosed at younger age or have a family history of cancer even more vulnerable

Soy Safe, Even Protective, for Breast Cancer Survivors

Study of 6,200 women finds the food linked to lower risk of death after nearly a decade of follow-up

Bad Diet in Youth Might Raise Risk of Early Breast Cancer

Study found an association, but didn't prove unhealthy foods caused disease

Another Study Ties Obesity to Certain Cancers

Digestive organs may be hardest hit by too much weight, study suggests

Diagnostic Mammograms Find More Cancers, and More False-Positives

Digital technology leads to 'marked improvement' in detection rates, radiology expert says

Prison Time Can Be Deadly … to Health

Inmates at elevated risk of developing cancer, dying from their disease, study finds

Exercise a Powerful Ally for Breast Cancer Survivors

Those who worked out were about 40 percent less likely to die from disease, review suggests

'Cooling Caps' May Halt Chemo-Linked Hair Loss

One of two trials was stopped early because results were so strong